How I cured myself from the incurable “skin writing disease”

Ing. Jan Jileček
14 min readJul 21, 2019
https://commons.wikimedia.org/wiki/File:Dermatographia.JPG

Skin writing disease — sometimes also called idiopathic dermographism, chronic idiopathic urticaria (CIU), or dermatographic urticaria- can have a plethora of causes. Doctors mark it idiopathic once they are unable to find a cause… and that was exactly my case. The end diagnosis of my immunologist was that it is “genetic” and incurable. Luckily I did not give up and found a cure.

First shock

In my 7 years-long search for curing it, I stumbled across many articles and stories, but I did not find any solutions. I read a lot about similar conditions — sun, cold, and stress initiated.

Mine was purely pressure related, but the solution I found should be useful even for those not pressure related.

The symptoms first appeared in February of 2010. One day the skin on my back suddenly started itching when I was sitting and leaning back in a chair and the more I scratched it, the more it itched.

I visited an immunologist who prescribed me with anti-histamines called Ewofex, it was based on fexofenadine.

It relieved me of the symptoms, so where the skin itched, was kind of 3D and yellow, it became 2D, red and did not hurt/itch. QoL, “Quality of life” elevated — but the cause was still hidden.

--

--

Ing. Jan Jileček

INTP, UE5 dev, Master’s degree in comp-sci, Creator, indie game developer, director, writer, photographer. I like BJJ, Jungian psychology, mythology and memes.